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Hospic Care

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Submitted By mwatts
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Hospice Care
HCS 212
December 12, 2012

Hospice Care

Hospice is a very special type of healthcare that offers comfort and support for patients and families that are facing a terminal illness. The focus is put on making a patient comfortable with a quality of life instead of a cure. The main goal is for a patient to have comfort and free of pain, with the hope that they will live each day as fully as possible, allowing people to live the remainder of their life with comfort and dignity. Hospice services are available for people that can no longer benefit from curative treatments, and are different from other types of care. You may require more help than you are used to which can be both good and bad. The life expectancy for these individuals is normally six months or less, but sometimes they do live past six months. These patients are encouraged to try and live as much of a normal life as possible and to the fullest as possible as well, they do not have to confined to a bed or stay at home 24/7. A multi-disciplinary team of physicians, nurses, pharmacists, social workers, dietician’s, hospice certified nursing assistants, clergy, therapist and bereavement counselors as well as volunteers who all work together as team to address the physical, mental, emotional, spiritual, and social needs of each and every family member. This care is provided in their own home no matter what age they are or their ability to pay. In addition, hospice also provides medications, equipment, hospital services, and supplies that are related to their terminal illness. A hospice team will provide support, education as well as counseling to family, nursing home staff, as well as nursing home residents that may know the terminal patient and yes hospice is available in a nursing home too. The most common setting is in a patient’s home, but is also provided in nursing homes, assisted living facilities, hospitals and your local Community Hospice House just depends on the type of care the patient is in need of. Hospice does not provide 24 hour around the clock care, but team members are available 24 hours a day, 7 days a week to answer any questions or if support is need at any time. Knowing what to expect is a slight comfort for when it does happen. Hospice should be call at any time the patient has diagnosed with a life-limiting illness. An assessment of the patient is done by a Registered Nurse and a Social Worker along with the patient and family member when a patient is put in hospice care. This is usually the process that determines which problems are most prominent; rather formal or informal. This assessment provides a plan of care which is used to address and alleviate those problems. When a person accepts hospice care they are giving up curative treatment they are choosing to live their final days as alert as possible and pain free, and the patient is also required to sign a Do Not Resuscitate (DNR). You will be assigned a hospice nurse, and he or she will be your main contact with regular visits. They will talk to you about what to do in a medical emergency. This means more than likely you will call the 24-hour hospice number rather than calling 911. If you are used to calling for an ambulance in the case of taking your family member to the hospital, this will be a big adjustment for you and a difficult change. When you call the 24-hour hospice number, they will help you in deciding what is the best thing to do in the event of an emergency. The Nation Hospice Organization (NHO) has specific disease guidelines for determining prognosis. Various chronic diseases such as congestive heart failure (CHF), chronic obstructive pulmonary diseases (COPD), and end-stage liver disease (ESLD), have such unpredictability that it is so difficult to anticipate when death will occur.
According to the Nation Hospice and Palliative Care Organization, hospice deaths account for 1 in every 4 people who dies in the U.S. of all causes. The demographic of hospice patients as follows:
54% female
63% 75 years or older
81% Caucasian
9% Black or African American
4.3% Hispanic or Latino
0.9% Asian or Hawaiian /Pacific Islander
4.6% not identified in any of the above categories

The top 5 non-cancerous causes of death in hospice include: 11% end stage hearth disease 10% dementia 7% lung disease 3% end-stage kidney disease 2% end-stage liver disease Other illnesses include AIDS, Parkinson’s, and/or Alzheimer’s Hospice has many different types of services that they offer to patients and family members, as well as caregivers and friends. Services available are: Nursing visits (they come to you) Patient comfort/pain control Medical and social assessment Support for caregivers Social workers visits Family, individual, and group counseling Spiritual counseling Physical, speech, occupational, and massage therapies Dietician consultations Hospice aides Respite care volunteers Grief and bereavement support Medication for Control and Pain Relief Medical Equipment Supplies
While the staff and volunteers cannot be by your side every minute of the day, a well thought out plan will be developed so that family and friends are ensured safety as well as comfort. A nurse is always just a phone call away day or night 24 hours a day 7 days a week. They are there to support you in tough and stressful time.
I choose Hospice because I have had experience with them on several occasions one with my grandfather and the other with my mother. Without the support and caring staff at a very difficult time in my life, I would not have made it through it. I could have never afforded the medication, equipment, and supplies that were needed for either of my loved ones. I could have never granted their one of their last wishes of being at home if it was not for the Hospice staff. These people do not get the recognition that they deserve, this is not an easy job. I am sure it is hard not to get attached to some of their patients, it takes a very special person to be able to do this and I envy them for being a strong person and helping others in their finale days. I was able to keep my mother at home and spend quality time with her that would not have the same if I would have had to keep her in a hospital. So for Hospice, I am very grateful and thankful.

References:
Nextstepincare.org
Takingcareofmomanddad.net/hospicecare

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