Premium Essay

Children in Hospice

In: English and Literature

Submitted By trina7778
Words 1023
Pages 5
Children in Hospice
Katrina Williams
April 26, 2012
Professor James Lazos

Children in Hospice
Research suggests that every year there are between 100,000 to 150,000 children born in the United States with a genetic disorder or defect. This represents approximately 20% of infant deaths each year. However, many of these children live to age well beyond the expectation, and some are enrolled in hospice. According to Armstrong-Daily and Zarbock (2001), “The concept of hospice today is applied to patients who are traveling through the final stages of their lives-in effect seeking shelter and comfort.” Hence, the main focus of this program is to prepare families for the death of a loved one. Although accepting these services is optional, families suddenly faced with the harsh reality that adulthood or even adolescence is not in their child’s future are in need of support services that offer much more than the comfort of a shoulder to cry on. There is an urgent need for organizations that strive to assist parents in helping the child to reach his or her full potential while encouraging loved ones to celebrate and cherish the time spent without the constant reminder that death is near.
Caring for a child with a disability can be challenging. Immediately upon the child’s initial discharge from the hospital, life changes drastically. Parents are instantly bombarded with phone call from social workers, medical supply companies, and nursing staff for updates about the child’s condition and progress. Because the child requires constant medical attention, it is essential to begin searching for specialists to assist with care and preventive services. If the child is covered by more than one insurance company, it is important to ensure that all medical providers accept both because out of pocket expenses can be costly. There is time that should be set...

Similar Documents

Premium Essay

Role Of Hospice In The Pediatric Population

...When you think of hospice, you think of palliative care typically seen utilized by the elderly population. Hospice provides comfort care for those individuals passing from life onto death. In addition, hospice gives support, provides education, and facilitates closure for loved ones during this transition. Hospice plays vital role in our healthcare system and is necessary in end of life care. According to the article, 44,000 pediatric deaths occur each year but only 10% of pediatric population utilizes hospice care. Clearly, hospice is a vital service that is being underused in the pediatric population. This article examines the characteristics of children who utilize hospice care so that we can better understand spread understanding for hospice...

Words: 371 - Pages: 2

Premium Essay

Unit 9

... | Company No 1 | Company No 2 | Advertising- The activity or profession of producing information for promoting the sale of commercial products or services. | Martin house children’s hospice use leaflets, posters, TV adverts to try people to advertise people to help children who are ill and help them with the fundraising.So advertising their service by TV adverts and leaflets they are trying to attract people to help to them and give some help like a financial help. | Tesco advertising their products and service by leaflets, posters, also they are advertising on TV. Most Tesco advertisements on TV are when people are back from work or somewhere and when they are watching some movies.To promote their products and services tesco is advertising them by posters, leaflets and also on by doing this they are attracting customers every time because tesco has a huge amount of customers and everytime they are trying to attract new customers and current customers. | Sponsorship-sponsoring your product to another business. | Martin house hospice doesn’t sponsor but many other businesses sponsor them for the example schools or shops, like Tesco they are raising money for martin hospice and promote people to give some help to small children so after this all moneyare going to the charity.. House has little access to public funds and relies almost entirely on charitable donations from individuals, charities, trusts, companies, organisations and the......

Words: 1378 - Pages: 6

Free Essay

Hospice Care

...Hospice Care How much do people know about hospice care and what is involved in it? We research just about every big decision that affects our lives right now. For example we may research what career is best for us and our family, what kind of car best fits our financial needs, what kind of mortgage can we afford over a long period, and more important how is the neighborhood. Research is even conducted on something as small as what is the latest and greatest phone on the market. We spend hours or some times days researching these decisions, but how much time do we spend looking into the last days of our lives? If the average American is like me, they have not done any research about hospice care. My knowledge of hospice care was very limited by personal experience with both of my grandparents. Several years ago both of my grandparents were suffering from terminal illnesses and were placed in a hospice in Los Angeles with only a few months to live. I recall going to visit both of them and remember how poor the facility was. Just like with almost anything involving medical care, you get what you pay for. Neither one of my grandparents were financially at the top of the health care ladder and were both on Medicare like most Americans in their demographic. Hospice care was first established in the United States in 1970 and has become a growing industry since. (Hospice care in the United States, 2011) By 1995, hospices were a $2.8 billion industry with $1...

Words: 1121 - Pages: 5

Premium Essay

Nursing Career

...Nursing is a highly in demand profession. Having a RN degree can open many doors in the medical field. They have nurses who work with children, those that work in Hospice and some take more of a manager position as a Director of nursing. The satisfaction of knowing you are helping another and that your job makes a difference in someone else’s life is the greatest reward. Pediatric nursing requires a desire to work with children. Pediatric nurses work in many settings such as clinics, hospitals, and schools. As a pediatric nurse you work closely with the family in the care of the child. Pediatric nurses can help grandparents meet their grandchildren's healthcare needs without neglecting their own. (Farmer, 1) Working with children who are battling cancer has to be hard emotionally. Bonds are formed between nurse and child during their treatment. It takes a strong loving person to work daily in a children’s unit. The rewards are sweet but the loses are bitter sweet. Hospice offers medical care toward a different goal: maintaining or improving quality of life for someone whose illness, disease or condition is unlikely to be cured. (Hospice Foundation of America) The focus shifts from curing the illness to helping the patient live with the illness for what length time they have left. Most hospice patients have 6 months to 1 year to live. Hospice nurses offer a lot of emotional support to the patient and there family. They help the patient accept that death is soon......

Words: 501 - Pages: 3

Free Essay


...all sick through spirituality (Amitabha Hospice Service Offering Kindness & Clarity, 2000). Death rates for mother and children's were tremendously high, fewer people lived over the age of 40, and most of every resource was devoted to survival. Christianity began to spread in Europe and churches or monasteries which lead to the intake of sick and the disabled. Women who were well off or lost their husbands volunteered to work in the monasteries as care takers. During Medieval times during crusades, travelers discovered places of refuge with the nunneries as well as the monasteries. During the development of medicine and hospitals, the ill patients found treatment at these facilities but as diseases formed and the fear of outbreaks developed family members preferred for the care to take place in the home. The community would then prepare food and provide clothing for the individuals families who were taking care of them. The aftermath of WWII helped healthcare services provide better medicine for the ill which saved a lot of lives. The name hospice originated from the care of the terminally ill patients by Mme Jeanne Garnier and founded The Dames de Calaire in Lyon, France during 1842. Hospice care is an important part of health care usually according to (NHPCO - National Hospice and Palliative Care Organization, 05/1). Dame Cicely Saunders continued the hospice care services as she began her duties and established a hospice named St. Christopher's in the......

Words: 1098 - Pages: 5

Premium Essay

Later Adulthood Development

...In our society, we tend to shy away from thinking about death. The terminally ill generally die in institutions (hospitals and nursing homes), away from their homes. Therefore, we are seldom exposed to people dying. Many people in our society seek to avoid thinking about death. They avoid going to funerals and avoid conversations about death. Many people live as if they believe they will live indefinitely. Fortunately, the hospice movement has been developing in recent years in an attempt to foster death with dignity. A hospice is a program that is designed to allow the terminally ill to die with dignity—to live their final weeks in a way they want. Hospices originated in the Middle Ages among European religious groups that welcomed travelers who were sick, tired, or hungry (Sullivan et al., 1980). Hospices serve patients in a variety of settings—in hospitals, in nursing homes, in assisted-living facilities, and in the dying person’s home. Hospices provide both medical and social services, Children should not be sheltered from death. Funerals help children learn that death is a natural process. Taboos against talking about death and dying need to be broken in our society. You may find that tactfully initiating discussions about death and dying with friends and relatives will be helpful to you, and to people close to...

Words: 295 - Pages: 2

Premium Essay

The Hospice Truth

...Executive Summary When people think of Hospice, they think of someone who is dying within the next couple of days, but it isn’t what it seems. Hospice is not a place; it’s a philosophy of care that enhances life as it nears its end for the patients and their families and friends. (Odyssey Health Care, 2013). Some people may feel that it’s scary to have to see someone going through something that they cannot fix, but what people have to realize is that you are making a difference in their lives. Some of the patients don’t have any family, so for someone to just go and talk to them for less than 30 minutes can really make a difference. The patients that are in Hospice sometimes don’t even show symptoms and act completely normal. Most patients accept that they are going to pass, so they usually do whatever they can before that happens. As soon as the physician let’s the patients know that hospice care is appropriate, they call Odyssey Hospice nurses. Within three hours, 24 hours a day, seven days out of the week, the patient is admitted into the program. At the end of life, what often matters most to a person who is dying is simply taking the time to hold a hand, give support and just be there. We as Odyssey Hospice volunteers would like to improve the quality of life of all individuals who see Hospice as something different then what it actually is. Mission Statement To provide compassionate care to those we serve during the end of life’s journey through our commitment to...

Words: 4179 - Pages: 17

Free Essay

The Effect of Palliative Care on Other Family Members

...may become ill themselves. Many experience depression. Family Caregiver Alliance (as cited in McMillan et al., 2006) has estimated that over fifty million Americans assist a family member with a disability or illness on a regular basis. Of these ill patients, many require extensive care from family members. Caregivers of cancer patients especially experience very high stress levels. They are often burdened with physical exhaustion, emotional distress, and financial worries from loss of time at work to care for their loved one (Emanuel & Emanuel, as cited in McMillan et al., 2006). The purpose of the study I reviewed was “to determine whether hospice plus a coping skill training intervention improved family caregivers’ quality of life, burden, coping, and mastery, compared with hospice plus emotional support and usual hospice care (McMillan et al., 2006, p. 214)”. To participate in the study, caregivers had to be caring for adult cancer patients, both had to give consent, both had to be able to read and comprehend English, both had to have achieved at least a sixth grade education, and both had to achieve a minimun score of seven on the Short Portable Mental Status Questionnaire (McMillan et al., 2006). This questionnaire is a tool used to assess organic brain deficits in the elderly. It measured orientation, remote memory, and ability to complete a serial subtraction task (Pfeiffer, as cited in McMillan et al., 2006). Subjects were excluded if the caregiver was......

Words: 933 - Pages: 4

Free Essay

Hat Task 2

...of emotional support, and financial concerns. Firstly, Mrs. Thomas’ physical comfort needs addressed immediately. As evidenced by the patient spending large amounts of her day crying in bed, her pain is not under control. As her nurse, I would listen to her fears about addiction, but discuss quality of life versus drug addiction. I would explain how once her pain is tolerable, she will be able to assume a more productive, engaged role in her own life. Secondly, addressing Mr. and Mrs. Thomas’ financial concerns would be my next order of business. Insufficient health care insurance or financial resources can cause excessive worry and concern for the dying patient. Depending on Mrs. Thomas’ life expectancy, she may qualify for Medicare hospice benefits that would greatly decrease their medical expenses. According to the Center for Medicare and Medicaid Services to qualify one must, “meet all...

Words: 1019 - Pages: 5

Premium Essay

Characteristics and Environments of a Human Service Organization

...Organization The local organization chosen is the E. Carlton Powell Hospice Center, which provides care within the center for patients who have been given 6 months or less to live and are not able to remain in their homes. Apart from the hospice center they also have a home care agency that provides care for patients that remain in their home or in nursing facilities. This paper will discuss the vision, mission, how it is governed and staffed, the stakeholders and their influences on the organization, marketing strategies and importance, values of diversity, and any environmental trends in which they are faced. Mission and Vision The Community Home Care and Hospice provides care within the Carolinas and is the largest provider. The agency was developed in 1995, by the Carrolton Management Corporation. The agency has grown in response to the increase in admissions, the 24/7 care, and the efforts of personal care. The foundation is non-profit 501 © 3 organization. The mission and visions of the agency is: “As a charitable wing of Community Home Care Hospice, the Community Hospice Foundation raises funds to support the crusade against life-limiting conditions by contributing to community awareness and education; scholarships and research; and programs that engage in the practical ministry of indigent care while honoring those we serve and memorializing those for whom we have cared. Community Hospice is committed to providing supportive, palliative, and......

Words: 1131 - Pages: 5

Premium Essay

Ellas Crossingover

...hardest jobs in society today. Social workers have to be there when children are neglected, family members are abused, elderly abuse, and family placement. In this scenario the social worker is needed for placement, with placement it is best to find out what is better for the individual not necessarily the family members. While finding out what is best for the individual it is a social workers responsibility to meet with his or her family members and get to know them and there background/history to make sure that the right decision is being made. When one is aware that he or she is living their last days they then want to live comfortably and peacefully. They do not want to spend his or her last days with people whom they do not know. Ella already had her mind set as to how she wanted to spend her last days. Even though Ella’s family members had several problems; Ella still wanted to be in the comfort of her own home with her family members. If Ella is in her home she is already use to her surroundings and the people around her. If she is in a hospital setting she could possibly have to share a room if the hospital is packed. If she goes home she do not have to worry about having to share her room space with anyone. Ella already had cancer and she over came the illness once however it came back. And when it came back it came back even worse than before because the doctor told her that she needed hospice. When hospice is even mentioned the situation is not at all looking......

Words: 1587 - Pages: 7

Premium Essay


...I would explain to them the difference between natural healing vs. modern medicine. In an article by author Thomas Sullivan entitled Modern Medicine vs. Alternative Medicine: Different Levels of Evidence; he mentioned that about 40 percent of Americans have tried some form of alternative medicine at some point but studies clearly show alternative medicine simply does not (Sullivan; 2011). Studies have shown that patients who use alternative treatments have a poorer survival time. Modern medicine was or is made to fight off infectious diseases like cancer, diabetes, cardiovascular diseases, etc. Ella and John have three children, Sam, Lila and Joe. Sam is divorced with a son that he does not have a relationship with and he is an alcoholic. Lila is married with a daughter that is in college and she is a diabetic. Joe is also married with three children. Joe oldest daughter Lucy is bipolar and has a drug problem. Josh who is the middle child is beginning to have a drug problem also and Abe is beginning to act...

Words: 1863 - Pages: 8

Free Essay

Describe P1

...In this assignment I will be comparing and contrasting the differences between BP and the North London Hospice. These are two extremely different businesses that have completely different aims and ambitions. The first major and obvious contrasts between these two companies are that BP is a limited company whereas the North London Hospice is a charity. BP The brief history of BP BP's businesses are organized to deliver the energy products and services people around the world need right now. BP’s history is full of discoveries, starting in 1908 with oil found in a rugged part of Persia after a long and difficult search. Since then, discoveries large and small have fuelled their progress. Through BP’s two main operating segments, Upstream and Downstream, BP find, develop and produce essential sources of energy, turning them into products that people need. The scale BP work on BP is one of the largest companies worldwide and has total domination in oil and gas industry. BP operate in almost 80 countries, have a staggering 84,600 employees, their economic value is up there with most valuable companies in the world with a worth of $359.8 billion, BP are also operating an outstanding cash flow of £32.8 billion. The endless amounts of statistics that are ‘out of this world’ continue as BP can boast about producing 3.2 million barrels of oil per day and have approximately 17,200 retail sites running worldwide, BP easily have the right to call themselves a world class company......

Words: 1709 - Pages: 7

Premium Essay

World Hospice and Palliative Care Day

...a street rally to mark the occasion of World Hospice and Palliative Care Day. The rally consisted of the president of Ashic Foundation Salma Choudhury, AVC volunteers, who are students from various universities and schools, and the parents of the children present in the Foundation. The rally started from the Ashic Palliative Care Unit (PCU) in Dhanmondi 3/A and went up to City College. Again, the rally began from Dhaka National Museum and continued all the way across University of Dhaka to the Press Club where members from the Bangladesh Cancer Society joined in the event. AVC achieved its purposes of creating a human chain and rallying on the streets on that very day. AVC wanted to share its vision of increasing the availability of hospice and palliative care throughout Bangladesh by creating opportunities to speak out about the issues involved. The second aim was to raise awareness and understanding of the needs – medical, social, practical, spiritual – of disease-stricken people and their families. The third was to raise funds to support the cause. While the rally was on, many took interest and AVC volunteers exchanged meaning conversations with countless people – stating the dire importance of better hospice and palliative care in Bangladesh, demonstrating how every single person can be of great help by contributing even little, giving away informative leaflets, etc. This rally was a motif to celebrate and support hospice and palliative care in Bangladesh. For the......

Words: 289 - Pages: 2

Free Essay

Szt1 Task 2’s sake only. These early experiences have led me to a belief in strong support of patients and their families rights to make decisions on withdrawal of care, comfort measures, dignity in dying and even as far as supporting self determinate euthanasia for terminally ill patients. I believe that in this regard, people treat animals better than their loved ones. I have found it very “comfortable” and almost easy to help families through the decision making process for withdrawal of care and Do Not Resuscitate orders (DNR). Supporting families and patients in their last minutes has been immensely rewarding. I have great respect for medical professionals and the families that put their trust in those involved in palliative care and hospice. However, these belief systems have provided many challenges in my nursing career as I have dealt with many families who are unwilling to “let go” of a dying family member. The difficulty is in supporting these families as I watch the patient suffer through...

Words: 1513 - Pages: 7