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Do the Ends Ever Justify the Means?

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Do the Ends Ever Justify the Means?
When I first heard about the book "The Immortal Life of Henrietta Lacks", I thought it was just a reading assignment when I was in high school that I had to complete for a grade. As I began reading I became particularly interested in Henrietta Lacks and the HeLa cells. In "The Immortal Life of Henrietta Lacks", Rebecca Skloot talks about Henrietta Lacks and how her cells were taken without her permission, and how her family suffered afterwards. Skloot shows how medicine and science were seen back in the 1950's compared to now.
Henrietta Lacks was a “mother of five who died of cervical cancer at only thirty-one years of age” (Gabbay). When she passed away the doctors at John Hopkins asked her husband, David Lacks, if they could do a biopsy on her. At first he said no, but he finally told them they could go ahead. The doctors never told him or his family that they were going to take her cells and keep them. Nor did they tell the family that Henrietta's cells were growing at an incredible rate and were being shipped and bought across the world. “The existence of a constantly reproducing, or immortal, line of cells would permit an abundance of research that had never before been possible” this is what caused the cells to be coveted by doctors and scientist all over the world (Gabbay).
“I have always thought it was strange, if our mother cells done so much for medicine, how come her family can’t afford to see no doctors? Don’t make no sense” (Gabbay). This statement was made by Henrietta’s daughter Deborah. Many companies made a lot of money from Henrietta's cells, known as HeLa cells, while her own children couldn't afford their medical bills. Henrietta's family didn't know about the HeLa cells until scientists investigating the cells began using her husband and children in research without their informed consent as well. Even though the “HeLa cells became a multi-million dollar industry” after Henrietta's death, her family never received any compensation or profits (Gabbay). Back then it wasn't required by doctors to ask patients for their consent. So when Henrietta died, it was not required to tell her family that the researchers would be using and maybe even selling the cells. If it had been required to ask patients and pay them for the product of their cells, the Lacks family would have known much sooner and could have had the proper medical care they should have had. If a patient doesn't want to give consent, then the doctor doesn't have the right to take tissue samples from him or her and use it or make a profit from it. Henrietta didn't know about her cells being taken when she was alive and neither did her family. It was unfair to Henrietta and her family.
Skloot describes how the Lacks family was attacked by reporters questioning them about the HeLa cells and not about Henrietta Lacks. I was irritated with the media reporters because they were making Henrietta's family's life hell when they were asking about her cells, reminding them that their mother was dead also due to her family being poor was unable to fully comprehend the science behind what was being done. Back then there was a term called "benevolent deception", which described how doctors withheld information from their patients, thinking that it might upset the patient. It's wrong to withhold information from a patient when it's about his or her health.
When Rebecca met the members of the Lacks family, she found out that they had little knowledge of what was going on with HeLa cells. It wasn't surprising that the Lacks family didn't know what was happening with the cells. The family feared what they believed were "night doctors who abducted black people for medical research"(Skloot). Because there was still discrimination then, they feared the worst. In my opinion the Lacks family was angry with the scientists using HeLa cells from Henrietta without the family's consent. I think they wanted everyone to know that Henrietta didn't donate her cells, they were taken without asking and without telling the family what was going to happen to them.
Rebecca talks about whether or not people should have the rights to their own tissues. She points out two issues, consent and money. In the past there was no informed consent, so the doctors and researchers felt free to use tissues in whatever way they wished, with little concern for patients' rights. Nowadays there is a different system, and it's required by the law to ask for a patient's informed consent.mThe money issue is a question of whether doctors should be required to tell patients if their cells or tissues are going to be used for commercial research, and what rights those donors should have. Later on, “scientists sequenced Henrietta Lacks's genome and made it public, without asking the family's permission” which was just another way in which the family was violated and looked over (Silver). Apparently Henrietta didn't get her rights, and neither did her children. Any way we look at it, if the family had received any benefits from the cells, it might have justified the way those cells were taken.
The story of Henrietta Lacks and the HeLa cells relates to the topics discussed so far in classes due to the fact that just as with much of women’s history women are overlooked and taken advantage of. Women of every race have been used and abused in various ways for the benefits of men and their ‘needs’. Repercussions of doing so were overlooked due to women being treated as though they were and in some ways still are second to that of their male counter parts. However, with time comes change and instead of the laws limiting women they have now been changed to protect them. There is an illustration from 1785-1805 that calls for women to “keep within the compass” and I believe that this can be applied to the ways in which Henrietta and her family have been treated. The white doctors whom cared for Henrietta may have been biased due the color of her skin and not felt the need to inform her due to the fact that she wouldn’t be able to comprehend all the scientifics of what was happening to her so the compass metaphor may apply to her due to her race and keeping within the expectations brought onto her by the society of which she was a part of (Block, Alexander. And Norton pg 134). Through what has occurred throughout history has changed laws for the better by understanding what has occurred and attempting to have laws to protect people so that history does not repeat itself. Recently the family is being recognized and brought into the research which is a huge step since this all began in 1951. The issue between science and the Lacks may never be completely resolved and it is terrible to think that her family has not had any form of compensation for what has occurred for over 60 years however it is also amazing to think of the various medical advancements that have occurred since then as well.

Works Cited
Block, S., Alexander R., Norton M.B. Major Problems in American Women’s History. 2014. Print.
Gabbay, Frances H. "An American Woman And The Right To Health." Psychiatry: Interpersonal & Biological Processes 75.2 (2012): 113-119. Academic Search Premier. Web. 10 Mar. 2015.
Silver, Marc. “A New Chapter in the Immortal Life of Henrietta Lacks.” National Geographic. (2013): National Geographic. Web. 10 Mar. 2015.
Skloot, Rebecca. “The Immortal Life of Henrietta Lacks.” Broadway Paperbacks. 2010. Print. Mar. 2015.

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