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Personal Impact Paper

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Personal Impact Paper
NUR/427
January 18, 2016

Personal Impact Paper Living with a chronic disorder may affect a person and their family's lives. These disorders affect a person's physical and psychological health, emotions, independence, and their jobs. Depending on the disorder and severity determines treatment options that can affect the person financially. With today's medicine, technology, and resources people can manage and live a life. Learning to live with a chronic disorder can be emotional and takes time to accept. Millions of people worldwide live with epilepsy. One in twenty-six will develop epilepsy. The causes are unknown in two-thirds of patients. This neurological disorder causes a disruption in brain cells, which can cause seizures, sensations, unusual behavior, or loss of consciousness. Epilepsy treatment depends on the severity and frequency of seizures, a person's overall health, medical history, and age. These treatments may include medication, diets, surgery, epilepsy devices, and epilepsy first aid. A young woman, Nichole was nineteen years old, and just completed an emergency medical technician (EMT) school when she had her first grand mal seizure. She had to learn about and how to live with this disorder. As a way to help herself and others, she began posting videos titled Nichole's epilepsy on youtube.com: https://www.youtube.com/channel/UC1BIjErzoq8oH9apq_DPpiw. She shares her feelings of depression and the loss of her independence. Over time, she found a way to focus on what epilepsy has given her such as advocacy, the realization of her support system and the kindness all around her. Though she discusses her loss, she has not allowed it to keep her from having hope. She promotes positive thoughts and encouragement stating, "don't give up," to others suffering from epilepsy. Nichole has been able to find resources in her community and encouraged other to be proactive and do the same because the resources are available. In her video, Nichole also states she lost her license and that impact was like the loss of freedom. She can't just grab her keys and go somewhere. Socially epilepsy affects their confidence, job, relationships, and getting around. Epilepsy can have a cognitive effect causing impaired concentration, memory loss, slower thought processing and muddled speech that may be seen as intellectually slow. These affects can cause insecurity in these individuals and decrease their social interactions. Socially these individuals struggle with disclosing the disorder. This may cause additional anxiety. There's a fear of rejection or embarrassment. If they were to disclose their disorder, would it affect their job or relationship? It also becomes a safety issue. Disclosing their disorder may be proactive and safe for the individual. Getting around on their own be difficult. Being unable to drive and needing to rely on a family member or friend is a loss of independence. They have limited options and choices. Financially individual may lose income because of the inability to work. They gained the expenses of medication and treatment. Treating epilepsy is continuous and needs to be monitored by a physician. Nichole shared having to obtain disability and insurance needed to allow her to have good medical care. Nichole also mentioned losing her just after having five grand mal seizures at work causing her to be out from work, and the reason for letting her go. Individuals who live with epilepsy commonly feel they are a burden. It can be alarming to witness a seizure or know someone with epilepsy. Their family and friends worry about them. Their world is turned upside down, and they have little control. Their plans are disrupted. Personally, Nichole shares her struggle and how the first couple of years were the hardest. She had to understand and accept having to live with this disorder. She talked about having everything and how her life was on track. She states wanting her life back and says she will get her life back. Nichole was able to utilize her support system; family and friends along with resources to motivate her. Without this, she may not be advocating for others suffering from epilepsy. Using her voice to share her story was also therapeutic. Though it has not been easy, over time she was able to make changes to her life as she learned to live with epilepsy. Because Nichole is a very positive and motivated individual, I would recommend attitude learning and the effect of mood as well as cognitive learning. She has found improved mood from posting video and sharing her story. She is also providing support and education for her viewers. Because of this, I feel she would watch other videos and gain more insight. And according to Redman, 2007, the attitude learning and effect of mood, "this model might not be a health care professional but possibly another patient with whom the learner can identify, which is the reason for establishing colostomy and ileostomy clubs and other such groups. Another way of influencing attitudes is to provide satisfying experiences so that the person develops a positive response to ideas or feelings associated with the experiences." As a cognitive learner, I believe that Nichole learns from experience and her mood and behavior is effected by her experiences and according to Redman, 2007, "cognitive learning theory holds that behavior and mood is structured by the way people think about their experiences. In cognitive learning theory, transfer is not automatic; when it occurs, it is in the form of generalizations, concepts, or in sights that have been developed in one situation and are being used in other situations." I chose epilepsy because have several epileptic clients, and they all are in a different place emotionally. They are also all under different treatments that I find I have to research to keep up with their treatments. Most recently I had a client who began vagus nerve stimulation. She is still experiencing frequent seizures but this treatment is gradual as the find a therapeutic level. After this assignment, I thought I would suggest that my clients watch an impact video or attend a support group and get some feedback. I'd like to know how they feel when they hear others speak about their disorder and does it make them want to speak up to express their feeling and thoughts. I hope that it would be beneficial for them.

References
Kerr, C., Nixon, A., & Angalakuditi, M. (2011, December). The impact of epilepsy on children and adult patients'lives: Development of a conceptual modal from qualitative literature. Seizure, 20(10), 764-774. doi:doi:10.1016/j.seizure.2011.07.007

N. (n.d.). Nichole Epilepsy [Video file]. Retrieved from Youtube.com website: https://www.youtube.com/channel/UC1BIjErzoq8oH9apq_DPpiw

Redman, B. K. (2007). The Practice of Patient Education (10th ed.). Atlanta, GA: Mosby.

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