...Fathers’ Perspectives on the Emotional Impact of Managing the Care of Their Children With Cystic Fibrosis Claire C. Hayes, MSc, BSc, RCN, RM, RGN Eileen Savage, PhD, MEd, BNS, RCN, RGN In this article, fathers' perspectives on the emotional impact of managing the care of their children with cystic fibrosis (CF) are examined. The constant worry of living with the unpredictability of CF was highlighted in this study, drawing on interviews with eight Irish fathers, who experienced difficulties communicating their concerns to others. Despite efforts at not dwelling on CF, fathers described being surrounded by constant reminders. To minimize the emotional impact of managing their children's care, fathers described living from day to day rather than looking into the future. These findings demonstrate the need for supportive interventions in helping fathers manage the emotional demands of caring for their children with CF. © 2008 Elsevier Inc. All rights reserved. Key words: Fathers; Children with CF; Emotions; Worries YSTIC FIBROSIS (CF) IS a progressive, lifeshortening, multisystem disease of the exocrine glands, which predominately affects the respiratory tract and the gastrointestinal tract. Increased mucus production in the small airways resulting in progressive lung disease is the primary cause of death (Orenstein, Winnie, & Altman, 2002). Improvements in life expectancy into the third and fourth decades can be attributed to scientific and medical advances in treatment interventions...
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...or to grow up with the memories of childhood. We try all we can as parents and family to keep our children safe we just can not perdict a child getting a life threating illness, we do all we can to make our child happy while going through a scary ordeal. If we can make one dream come true for a sick child for one day of forgetting they are staring down a life threatening illness and make that child laugh wouldn't giving that child a wish come true be amazing? The social program I am creating is a program to help a child who is terminally ill or has a life threatening illness called “Dreams Come True.” A dream come True program would for one day grant sa wish one child makes come true. To make this happen I would need to set up the program, find donors and volunteers, financing to help the wishes come true. Advances in medicine and modern technonogy have increased the survival rate in children with chronic illness, including illnessess that were considered fatal (Cohen,1995).Witnessing the child's pain and fear, combined with the constant fear of death makes it difficult for the family to function normally and plan for the future (Haas, 1990; Rolland, 1994; Sloper, 2000). Literature on the differential impact of the child's chronic illness on the fathers and mothers is limited . Although paternal roles have changed over the past few decades, with fathers becoming more involved in the care of their children, ...
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...Discuss the impact of chronic medical conditions on adolescents (12-18yo) and identify ways of promoting resilience or positive development (1300 min-1500 max words). A chronic or long-term illness results in major physical and psychological changes to the individual. The illness requires them to adjust to the burdens of the therapy implicated to treat the condition. There are multiple emotional, cognitive, motivational and behavioral factors that are stressed during the ongoing illness that hinders the individuals ability to develop and function healthily within Sigmund Freuds psychodynamic structure. Additional theories according to B.F Skinner, Mccrae & Costa and Carl Rogers compliment the idea that chronic illness will impact the individual’s ability to keep a positive self-esteem and develop socially and autonomously through adolescents. We will look into the specific factors that are impacted by chronic illness’, how exactly they relate to the responses of adolescent individual, how it affects their relationships with families and medical staff, and identify ways in which we can promote positive development despite the burden of a wide range of chronic illness’. For Adolescents and young adults, gaining autonomy is essential which is imposed while enduring management of a chronic illness. Obviously with illness’ such as cancer, Sickle cell disease, Cystic Fibrosis and asthma; the vulnerability involved with daily activities directly affect ones confidence in behaving...
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...Have you ever had a headache before? If so then you’re probably familiar with the pounding pain that wouldn’t go away. As I write this, the pounding sensation on the right side of my brain is undeniable. It has been there for almost two years and has remained twenty- four hours a day, seven days a week. Chronic migraines have an impact on every aspect of life. So you are probably wondering how this neurological disorder came about? Well I still don’t have an answer as to how it happened myself. It all occurred one evening in November on my way home from work. My vision rapidly began to blur until things were no longer visible in my right eye. Accompanying the vision was a sharp stabbing pain in my eye, which ran across the section of my right brain. I called my parents and was rushed to the emergency room. When I arrived they rushed me down to testing where they ran a CT which later returned normal. After testing returned normal they went through a medical history, gave me a shot of dilaudid, and sent me on my way home. I was hoping that would be the last time I would experience that pain and the last trip to the emergency room. Unfortunately, the pain continued for a week or two, along with the blurred vision. I decided to see my doctor, who sent me to an ophthalmologist, who then sent me to a neurologist. My pain continued to increase and I remained in a dark room, in bed a lot of the time. The ophthalmologist ran tests on my eyes and found decreased vision in my right...
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...Personal Impact: Multiple Sclerosis Nbiyea N. Conley University of Phoenix NUR/427 Multiple Sclerosis Multiple Sclerosis or MS is a chronic as well as progressive disease of the central nervous system. MS effects primarily women, between the ages of 20 and 40. MS is not a curable disease and the exact cause is unknown. It has been shown that Multiple Sclerosis has a major connection with genetics, environment, pathogens and vitamin D deficiencies. There are four types of Multiple Sclerosis relapsing remitting multiple sclerosis, secondary progressive multiple sclerosis, primary progressive multiple sclerosis, and progressive relapsing multiple sclerosis. My sister whom is 20 years old was diagnosed with multiple sclerosis in January of 2015. She simply took a shower one day and couldn’t determine the temperature of the water on her right side. She has never been one to complain so there was a definite concern from my entire family. Her gait remained steady, she has not has any falls at home. So my mother and I which are both nurses wrote it off as just general fatigue cause by her college final exams. After visit to the emergency room, spinal taps, MRIs and series of other test it was confirmed she had Multiple Sclerosis. I can remember the day the neurologist confirmed the diagnosis and that she had lesions on her brain. She looked at my mother and said “I have always tried to be a good person, why is this happening to me”. Since her diagnosis a series of things...
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...Multimorbidity is a clinical condition which is defined as a state where three or more chronic illness conditions prevail in a patient either centrally or dependant upon one or more central condition (Fortin et al., 2007). This clinical condition is characterised by overlapping pathophysiology, synergetic disease intensity and intersection of individual illnesses management (Boyd et al., 2010). Few examples of the composing illnesses include coronary heart diseases, dyspepsia, migraines, sleep disturbances, bowel imbalance and Sarcopenia ( Fortin et al., 2007) Prevalence of multi morbidity varies across different parts of the world depending upon variance of population sample, age group of the society, advancement of health care monitoring systems and ethnic conditions. In developing countries like most of the Asian countries, rates of life expectancy are reported to increase due to advances is environmental and working conditions of the population. With the increase in life expectancy rates, the prevalence of coexistence of these diseases also steeply increases and is directly proportional (Akker et al., 1998). Further more, the prevalence of this clinical condition is more in developing countries when compared to that of developed countries due to increased percentage of vulnerable groups like young children, diseased and unattended patients and poor economical conditions (Valderas et al., 2009). The government of UK launched a initiative in collaboration with the NHS...
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...Identify a chronic illness and recommend what specific changes to an organization’s acute care model would benefit this patient. Acute care is crucial in treating specific episodes of a medical event but does not prove effective in combating chronic diseases. Hypertension, diabetes, and back pain are prevalent chronic conditions that we discussed in our group. mentioned that adding a routine screening process for common chronic conditions, such as hypertension, would be an excellent way to identify illness that typically do not get routine preventative care. stated that when treating chronic conditions, hospitals should only be reimbursed for the procedure or acute treatment with a minimal stay. Patients who require rehab or treatment post-procedure should be transferred to an outpatient facility specializing in post-acute care. Post-acute care settings like skilled nursing facilities and home health agencies can help patients with chronic conditions by reducing re-admissions and decreasing acute care length of stay. Acquiring these patients earlier will be greatly beneficial in reducing costs. Additionally, patient education that focuses on lifestyle changes and self-management are important for long term survival. Improved communication and care coordination between the physicians and other providers within the acute care settings can greatly impact patient outcomes. Since provider reimbursement is predominantly structured to reward acute services, what changes or...
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...270 Associate Level Material Appendix B Program Scenario One Far West Elementary School Organization Mission As a team, parents and staff are dedicated to creating a caring, exciting environment that promotes responsibility, self-esteem, and academic achievement where differences are valued and learning is a lifelong goal. Our goal is to maintain a safe and caring public school for children, staff, and community by teaching skills that promote responsible, respectful behavior to self and others. Brief Community Description The community of Far West is a suburb of New Hampshire, which is a large metropolitan area with 2 million residents. Far West has a population of 30,000. Far West Elementary School has a student population of 700, 30% of the student having relocated from Asian countries within the last 2 years. Many of these students’ families are moving into the community to take advantage of the low cost of housing and are comforted by the presence of similar cultures. Many of the new residents have limited English writing, reading, and speaking skills. Funding Opportunity This funding opportunity provides professional development activities intended to improve instruction for students with limited English proficiency (LEP) and assists educational personnel working with these students to meet high professional standards. Projects should increase the pool of highly qualified teachers prepared to serve LEP students and increase the skills of teachers...
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...Addiction as a Chronic Illness Donnell Parker PS370-01 Health Psychology January 17, 2012 Chronic illness refers to conditions that have the following conditions: The condition involves some disability; it is caused by mostly nonreversible pathological change; and it requires training and motivation on the part of the patient to care for himself or herself. The onset of chronic illness can be sudden or gradual, but one characteristic common to all chronic illnesses is that the patient cannot fully return to the pre-illness state of health (Friedman 2002). Some examples of chronic illnesses are AIDS, various forms of cancer, epilepsy and asthma. Addiction is a condition that results when a person ingests a substance (alcohol, cocaine, nicotine) or engages in an activity (gambling) that can be pleasurable but the continued use of which becomes compulsive and interferes with ordinary life responsibilities, such as work or relationships, even health. Users may not be aware that their behavior is out of control and causing problems for themselves and others (Iliff 2012). Addictions are another form of chronic illnesses. Addictions are characterized by relapses in thinking or a return to substance abuse. Relapse is now seen as the rule rather than the exception in addiction recovery. And it is no longer viewed as a catastrophe but as an opportunity for learning more and better strategies for overcoming urges and for identifying the moods and...
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...Personal Impact Paper Donna Ballard, RN University of Phoenix Nur/427 Carolyn Diaz, MSN “Chronic illness is the irreversible presence, accumulation, or latency of disease states or impairment that involve the total human environment for supportive care and self-care, maintenance of function and prevention of further disability” (Curtin and Lubkin, 1995, pp. 6-7). Once a person is diagnosed with a chronic disease their lifestyle changes completely. The purpose of this assignment is to research the personal impact of a patient living with a chronic disease. I will discuss how the life style of this patient changed completely from being an active super model and independent to be dependent on her family. I will discuss the social, financial and personal effects that has incurred with this patient. I will also discuss how the patient learned about her disease, educational experience, and motivators the patient used in learning about her disease. (Towner & Inter-mountain Healthcare,Utah,USA, 2008). Sonya D is middle aged African American woman whom had a career as a super model; until she was diagnosed with Lupus. A married woman and mother of a teenager, she enjoyed walking and spending family time with her spouse and daughter. Patient is not obese, non-smoker and non-alcoholic. She had been extremely tired and in bed a lot. She noticed her extremities going numb and went to the doctor for a physical, not expecting to hear the diagnosis of Lupus. Lupus is an autoimmune...
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...which are (a) cognitive, (b) affective, and (c) psychomotor. By focusing on these three domains, we can observe how nurses can use these domains to care for and help educate patients with chronic illnesses. Bloom's Taxonomy of Education and its use in Nursing Education Bloom’s Taxonomy is a classification of learning objectives in education that was developed by a committee of educators in the late 1940s to early 1950s. It shows us that lower level knowledge must be mastered before acquiring higher level knowledge. In 2001, Bloom’s taxonomy was revised. According to Bouchard (2011) “The 2001 revision produced a more authentic tool for curriculum planning, delivery, and assessment that is better suited for use in all educational settings.”(p. 45). The Revised Bloom’s Taxonomy is a tool that can be used by nurses everywhere who educate patients. This tool allows nurses to ensure that (a) their education session is focused and clear, (b) is well documented, and (c) has standards for evaluation. This paper will focus on the three domains (a) cognitive, (b) affective, and (c) psychomotor identified in Bloom’s Taxonomy and how these domains can be applied to nursing education. Nurses who familiarize themselves with Bloom’s Taxonomy will find it helpful when educating patients on the chronic diseases with which they have been diagnosed and therefore increase the patient’s level of self-efficacy. Cognitive The cognitive domain is focused on knowledge or mental...
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...all of their clients and can improve the health and well-being of their clients that they serve. The main research question in this article is not stated outright. This author believes that the research question would be; what are the health benefits of physical activity in chronically ill adults? Also another question could be added; which strategies and practices are most effective in increasing physical activity in chronic illness. The hypothesis of this study was not stated. This author interprets the hypothesis would be; Physical activity in chronically ill adults will improve health and wellness to these clients. This article discussed the implications of findings that describe the strategies and practices commonly used to promote physical activity in patients with chronic illnesses, and the exercises that are most beneficial. This is very important in chronically ill clients’ health and well-being. The study variables were many because of the diverse population that was studied, sex, age socioeconomic status, and ethnicity and also the chronic illnesses that were within that...
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...program planning. The Madison Children’s hospital strives to be the worldwide leader in improving children’s health by providing the highest quality health care. The hospital’s mission is to be the leading source of research and discovery, educate the next generation of leaders in child health, and enhance the health and wellbeing of children and families in our local community. The hospital has recently started a program that is in charge of researching children with chronic illness. The program is interested in looking into how the children are self-managing their condition. The program is looking at the occurrences of complications due to chronic illness and what is causing the complications. The program will interview families of children with chronic illness to understand how their lives are being impacted and how improvements can be made. The program will conduct research into methods of self- management and professional care which improve the quality of life for children suffering from chronic illness. The program will select a group of participants to participate in interviews and research to improve their quality of life. The participants will be solicited through advertising at the hospital and local pediatric offices. The children will be taught new methods of...
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...Madison Children’s Hospital: Chronic Health Illness Program HSM 270 Abstract Madison Children’s Hospital has been serving the multi-cultural rich county of Orange, California since 1960. For more than 50 years, Madison Children’s hospital (MCH) has been steadfastly committed to providing the highest quality medical care to children. MCH has provided medical care to over 1 million children in the county of Orange. Our regional pediatric healthcare network includes a state-of-the-art main hospital facility in the City of Orange. Madison Children’s Clinic also offers many primary and specialty care services to the community. Madison Children’s hospital has recorded an increase in the amount of children and adolescents ages 0-21 with chronic illnesses. This has brought a concern to the community as well as Madison Children’s Hospital. MCH is dedicated to assisting and enriching health services, as well as developing programs to benefit the families of Orange County. MCH is proposing a funding opportunity to become a leader in research and discover, educated future generations, and enhance the health and well being of not only the children in the county of Orange, but worldwide. Madison Children’s Hospital is proposing funding for the Chronic Health Illness Program (CHIP). The CHIP program will provide all its services in a family-centered in-patient and out-patient facility to ensure continuity and cost effective care. The program serves infants to young adults...
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...Associate Level Material Appendix B Program Scenario One Far West Elementary School Organization Mission As a team, parents and staff are dedicated to creating a caring, exciting environment that promotes responsibility, self-esteem, and academic achievement where differences are valued and learning is a lifelong goal. Our goal is to maintain a safe and caring public school for children, staff, and community by teaching skills that promote responsible, respectful behavior to self and others. Brief Community Description The community of Far West is a suburb of New Hampshire, which is a large metropolitan area with 2 million residents. Far West has a population of 30,000. Far West Elementary School has a student population of 700, 30% of the student having relocated from Asian countries within the last 2 years. Many of these students’ families are moving into the community to take advantage of the low cost of housing and are comforted by the presence of similar cultures. Many of the new residents have limited English writing, reading, and speaking skills. Funding Opportunity This funding opportunity provides professional development activities intended to improve instruction for students with limited English proficiency (LEP) and assists educational personnel working with these students to meet high professional standards. Projects should increase the pool of highly qualified teachers prepared to serve LEP students and increase the skills of teachers already...
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