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Philosophical Foundations in Psychology

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The Qualitative Report Volume 14 Number 1 March 2009 61-80 http://www.nova.edu/ssss/QR/QR14-1/blanchard.pdf

Lived Experiences of Adult Children Who Have a Parent Diagnosed with Parkinson’s Disease
Amy Blanchard, Jennifer Hodgson, Angela Lamson, and David Dosser
East Carolina University, Greenville, North Carolina Little is known about the experience among adult children who have a parent with Parkinson’s Disease (PD). The purpose of this study was to explore, appreciate, and describe their experiences using a phenomenological methodology. Narratives were collected from seven participants who have a parent diagnosed with PD and analyzed according to Colaizzi’s (1978) phenomenological data analysis method. Seven thematic clusters were identified and an exhaustive description is presented to summarize the essence of their lived experience. The study indicates a strong sense of essential positivism from the participants’ stories, and overall, it seems PD has brought some degree of biological, psychological, socially, and/or spiritual meaning to their lives that they may not have otherwise noticed or experienced. Key Words: Parkinson’s Disease, Phenomenology, Biopsychosocial-spiritual, Adult, Children and Illness

Introduction “The bond between mother and child is so deeply rooted in our emotions that we fear to discuss openly anything that threatens the bond” – Glenna Atwood (1991) Establishing links between chronic illnesses and family impact are not novel (e.g., Cooke, McNally, Mulligan, Harrison, & Newman, 2001; Kielcolt-Glaser & Newton, 2001, Martire, Lustig, Schultz, Miller, & Helgeson, 2004). However, much of the attention to study inclusion of a family caregiver into the care experience has focused on the spouse (Keefe, Buffington, Studts, & Rumble, 2002) or children under the age of 25 (e.g., Olsen & Clarke, 2003; Pakenham, Bursnall, Chiu, Cannon, &

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