Premium Essay

The Als Association

In: Social Issues

Submitted By hparry
Words 1800
Pages 8
The ALS Association

Hannah Parry

SOCI 3377: Organizations & Their Environments
Dr. Campbell
February 12, 2016

The ALS Association is a national non-profit organization dedicated to spreading awareness and finding a cure for Amyotrophic Lateral Sclerosis (ALS). ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, causing patients to lose the ability to control muscle movement (ALSA.org 2016). The cause of the disease is still unknown and while medication and therapy can treat the symptoms and progression of the disease, there is still no cure. The ALS Association works through research, public education, care services, and public policy initiatives towards finding a cure and supporting the many people affected by the disease. Based in Washington D.C., the ALS Association is comprised of a headquarters, association chapters at the local level, and a national network of certified treatment facilities. In existence for more than a quarter of a century, the organization was thrust in the spotlight and subjected to increased scrutiny with the wildly successful “ALS ice bucket challenge” that swept social media in 2014. Is the ALS a disciplined Weberian bureaucracy or an organic grassroots organization challenging hierarchy and bureaucratic rules as detailed in the Neo-Weberian model articulated by Charles Perrow? Analysis of the organization, along with the wild popularity and financial gain from the ice bucket challenge, reveals that the organization is a dynamic combination of both Weber’s ideal type bureaucracy and a collection of passionate individuals whose autonomous freedom catapulted the association’s funding and visibility.
German sociologist Max Weber considered bureaucracy an ideal type- the most efficient and rational form- for the structure and management of organizations. He claimed that…...

Similar Documents

Free Essay

A and P

...movement. This will cause paralysis as the disease progresses and eventually will lead to death. ALS is difficult to diagnose since it resembles many other neurological disorders. It is not known what causes ALS and as of now there is no cure and very limited medications and treatments for those diagnosed with the disease. ALS is a disease that will ultimately make you a prisoner in your own body, mentally alert but unable to move. Amyotrophic Lateral Sclerosis is a progressive neurodegenerative disease that affects the nerve cells in the brain and spinal cord. The body uses motor neurons to send information to and receive information from the Central Nervous System. They travel from the brain to the spinal cord and from the spinal cord to the muscles resulting in voluntary movement. ALS will cause these neurons to progressively degenerate. The neurons will no longer be able to send impulses to muscle fibers that normally cause muscles to function. Eventually the brain will lose its ability to communicate with the body and to control muscle movement. There are many types of nerves in the body. ALS only affects the nerves that are responsible for voluntary movements. These movements are mainly controlled by the muscles in the arms and legs. The heart and digestive system are also made of muscle but they under involuntary control. Everything that these organs do, they do automatically. ALS does not affect these types of muscles. That leaves a body function that is......

Words: 886 - Pages: 4

Premium Essay

Association of Attention-Deficit Disorder and the Dopamine Transporter Gene

...56:993-998, 1995 Association of Attention-Deficit Disorder and the Dopamine Transporter Gene Edwin H. Cook, Jr.," 23 Mark A. Stein," 3 Matthew D. Krasowski," 2 Nancy J. Cox,4 Deborah M. Olkon,' John E. Kieffer,' and Bennett L. Leventhal" 23 3Department of Pediatrics, and 4Department of Medicine, University of Chicago, Chicago Child and Adolescent Psychiatry, Department of Psychiatry, 'Laboratory of Developmental Neuroscience, Harris Center for Developmental Studies, Summary Attention-deficit hyperactivity disorder (ADHD) has been shown to be familial and heritable, in previous studies. As with most psychiatric disorders, examination of pedigrees has not revealed a consistent Mendelian mode of transmission. The response of ADHD patients to medications that inhibit the dopamine transporter, including methylphenidate, amphetamine, pemoline, and bupropion, led us to consider the dopamine transporter as a primary candidate gene for ADHD. To avoid effects of population stratification and to avoid the problem of classification of relatives with other psychiatric disorders as affected or unaffected, we used the haplotype-based haplotype relative risk (HHRR) method to test for association between a VNTR polymorphism at the dopamine transporter locus (DAT1) and DSM-IR-diagnosed ADHD (N = 49) and undifferentiated attention-deficit disorder (UADD) (N = 8) in trios composed of father, mother, and affected offspring. HHRR analysis revealed significant association between......

Words: 4107 - Pages: 17

Free Essay

Non-Profit Management

...Hoque Shihab General Information: 1. Address: The ALS Association St. Louis Regional Chapter 2258 Weldon Parkway St. Louis, MO 63146 Phone Number: 314-432-7257, 888-873-8539 Email: info@alsastl.org Web site: www.alsa-stl.org 2. Number of Employees/Volunteers: Officer: 5 Board of Director: 13 Director Emeritus: 9 (decreased) Advisory Directors: 3 3. Mission Statement: “Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.” 4. Latest Impact Statement / Latest Main Accomplishments “The ALS Association and The American Academy of Neurology are awarding the 2015 Sheila Essey Award to Adriano Chio, M.D., F.A.A.N. (The University of Turin, Italy) and Robert P. Bowser, Ph.D. (Barrow Neurological Institute in Phoenix, Arizona). The award prize $50000 is given to continue ALS research.” Contact/2014 Financial Challenge: Kathi Henson, Board vice chair, Phone: 314-432-7257 According to the form 990, the ALS Association St. Louis Regional Chapter’s revenue is decreasing from the previous year. In 2012 contribution and gift was $1,518,636 but in 2013 it decrease to 1,429,073. This is a big threated issue for the ALS Association St. Louis Regional Chapter. Identify Donor Demographics: From the ALS Association St. Louis Regional Chapter’s official website we can find......

Words: 731 - Pages: 3

Premium Essay

No Thing

...marketing managers (Völckner and Sattler, 2006). Analyzing the transfer of associations between the brand and the new extension is essential when considering the success or failure of an extension strategy. The consumer mentally interchanges his ☆ The authors thank the following sources for their financial help: CICYT (Ref: SEJ200502315) and Government of Aragon (“GENERES”, Ref.S-09; “PM0262/2006”). ⁎ Corresponding author. Tel.: +34 976 762713; fax: +34 976 761767. E-mail addresses: emartine@unizar.es (E. Martínez), montagut@unizar.es (T. Montaner), jmpina@unizar.es (J.M. Pina). 1 Tel.: +34 976 761000x4943; fax: +34 976 762740. 2 Tel.: +34 976 761000x4693; fax: +34 976 761767. 0148-2963/$ – see front matter © 2008 Elsevier Inc. All rights reserved. doi:10.1016/j.jbusres.2008.05.009 knowledge and affection for the brand and the extended category (Czellar, 2003; Keller, 2003) generating changes in the brand image and its positioning (Martínez and de Chernatony, 2004; Park et al., 1986). Most researchers have focused on the “forward effect” or transference of associations from the parent brand to the extension (Aaker and Keller, 1990; Balachander and Ghose, 2003; Czellar, 2003). However, the “feedback” or “backward effect” from the new category to the extended brand equally deserves the attention of researchers (Balachander and Ghose, 2003), since it can cause the dilution of established brand associations (Desai and Hoyer, 1993). To avoid undesired results, firms can use......

Words: 10453 - Pages: 42

Premium Essay

Brand Image: Past, Present and Future

...set of associations, usually organized in some meaningful way" (p. 109) and in the same context Keller (1993) defines it as "perceptions about a brand as reflected by the brand associations held in consumer memory". Both of these definitions lead to the fact that there are various abstract features that may reside in the consumer’s mind about the brand, either objective or subjective. According to Definition of Low & Lamb (2000), "Brand image is the reasoned and emotional perceptions of consumers attached to specific brands". One thing that each of the definition conveys is that it is automatically formed depending on what consumers take meaning of the brand and each brand can have as many images as its consumers. *Corresponding Author: Mr. Basharat Naeem, Senior Research Officer, COMSATS Institute of Informantion Technology (CIIT), Lahore Campus, Pakistan 13069 Malik et al.,2012 Conceptual Evolution of Brand Image Gardner and Levy (1955) were credited with the introduced of the construct in 1950s, and described its social and psychological nature. The construct had its roots in the discipline of psychology that is why it captured its place in the consumer behavior research. It is based on different psychological variants which describes the consumer behavior (Gardner & Levy, 1955). With the development in the concept in its era of 1960s and early 1970s, it was researched and conceptualized on the basis of social psychological construct “attitude”. Bird et al, 1970......

Words: 5446 - Pages: 22

Premium Essay

Ethics in Counseling

...organizations. However, in several instances the codes of ethics were drafted after a significant delay. The American Psychological Association was founded in July 1892 and published its first code of ethics in 1953 (Evans, Sexton, Cadwallader, & American Psychological Association, 1992). Since the initial code was published, nine revisions have followed with the last being published in 2002 (Corey, Corey and Callanan, 2011). The American Counseling Association was established in 1953 and they adopted their first code of ethics in 1996 (ACA, n/d). The time following World War II saw great growth and development in the area of psychotherapy (Sexton, et al., 1992). During this timeframe several other of our current organizations were established. The National Association of Social Workers was formed by the consolidation of several other organizations in 1955 (NASW, n/d). The American Association for Marriage and Family Therapy was founded in 1942. The codes of ethics for the major organizations associated with psychotherapy have many general have many general similarities. The codes address topics of importance including the counseling relationship, communication, confidentiality, privacy, and professional responsibility. Both codes serve as a written framework to guide its respective members in the decision-making process and in their behavior (Corey, et al., 2011). The codes of ethics also serve as a basis for processing ethical complaints and inquiries. The codes enumerate......

Words: 3880 - Pages: 16

Premium Essay

Which Hrm Practices Contribute to Service Culture

...service culture? Akiko Ueno∗ ,† Royal Docks Business School, University of East London, Docklands Campus, 4-6 University Way, London, E16 2RD, UK It is known that Human Resources Management (HRM) can help to develop service culture, which will in turn improve service quality. The purpose of this article is to determine the relative importance of six HRM practices in terms of their impact on culture. A questionnaire survey of medium and large-sized UK service businesses was conducted. The results reveal that there is a strong association between culture and HRM practices, and that some management practices are more strongly associated with culture than others. Further research should explore the reasons why some HRM practices are more contributory to culture than others. Service businesses in pursuit of service quality should make use of these HRM practices for developing service culture in their organisations. This research has confirmed a strong association between culture and HRM practices, and also clarified the relative importance of HRM practices in terms of their impact on culture in order to improve service quality. Keywords: culture; HRM; services Introduction This article investigates the relative importance of six Human Resources Management (HRM) practices in terms of their impact on culture in order to improve service quality. In a previous study, it was found that there were, broadly speaking, seven practices which affect service quality: these encompass six......

Words: 6827 - Pages: 28

Premium Essay

Brand Equity for Online.Pdf

...determine if the traditional approach to measuring brand equity applies to online companies. Design/methodology/approach – This objective is pursued by: developing a measurement model of brand equity for online businesses; and testing the nomological validity of the model using structural equation modelling. Findings – This study finds partial support for the application of the offline brand equity theoretical framework based on brand awareness, brand associations and loyalty for online companies. Brand loyalty and brand value associations directly create brand equity. Research limitations/implications – The study is cross-sectional, the indicators or observable variables used in this study may not be deemed comprehensive enough, no interaction effects have been incorporated, and finally, the research study was based on a few online business retailers. Practical/implications – The results support the view that a consumer’s perceived sense of value resulting from a transaction with an online business develops loyalty. Also, brand-trust association and brand awareness indirectly contribute to creating brand equity through their influence on loyalty. Loyalty is by far the most important source of brand equity because of its direct influence and mediating role in creating brand equity. Originality/value – While many studies have identified and ratified the importance of brand equity dimensions among traditional firms, few have tested the model with online companies. Keywords Brand......

Words: 11896 - Pages: 48

Premium Essay

Cbbe Scale New

...consisting of brand awareness, perceived quality, brand associations and brand loyalty. To test the brand equity scale cross-nationally a survey was undertaken in the UK and Spain. Measurement invariance was assessed using multi-group confirmatory factor analysis. Findings – The brand equity scale was invariant across the two countries. Results show that the consumer-based brand equity scale has similar dimensionality and factor structure across countries. In addition, consumers respond to the items of brand equity in the same way, which allows meaningful comparison of scores. Research limitations/implications – Future research could examine the cross-national generalisability of the brand equity scale using other countries’ products and services. Practical implications – Given that the brand equity scale is invariant across countries, researchers and international marketing managers can use this instrument to measure and manage brand equity across countries. This is suitable for testing theoretical and conceptual relationships in different national settings and allows managers to design and implement efficient international brand strategies. Originality/value – The study contributes to the scarce literature testing the cross-national applicability of consumer-based brand equity. Furthermore, the research enhances consumer-based brand equity measurement by using a non-student sample and including a different type of brand associations and multi-item measures for all the brand......

Words: 8263 - Pages: 34

Free Essay

Ptsd

...combat tours is almost stereotypical. In fact, in the 2012 American Psychological Association (APA) annual meeting, some argue to change PTSD to post-traumatic stress “injury” to be more accommodating to soldiers, and to resolve the issue of unreported PTSD-related symptoms within military ranks (American Psychiatric Association, 2013). Military officials explained that many soldiers do not report their symptoms because of the fear of being viewed as weak (American Psychiatric Association, 2013). However, the incidence of PTSD can be as common among civilians as it is for those in the military. Barlow and Durand (2013) reported recent studies showing that those who are “raped, held captive, tortured, or kidnapped, or badly assaulted” are more at risk for developing PTSD than those who experienced military combat. While the reports conveying “zero” conditional risk of PTSD from exposure to military combat seem to need clarification, PTSD remains to be a debilitating condition for those who have the proclivity to develop the disorder. This paper will discuss the diagnostic criteria, etiology, effective treatment, and outcome research pertaining to PTSD. PTSD: A trauma and stressor-related disorder PTSD now belongs in the group of trauma and stressor-related disorders as published in the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (American Psychiatric Association, 2013). Other disorders included in this group are: reactive attachment disorder,......

Words: 2879 - Pages: 12

Premium Essay

Trial

...Campaign: ALS Ice Bucket Challenge Synopsis: The ALS Ice Bucket Challenge was a global campaign that was used to raise awareness and funds for the Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s Disease. Although the said challenge has been on for decades, this particular ice bucket challenge was brought to the attention of the public by Pete Frates. Pete was a former Boston College captain of baseball who was diagnosed with ALS when he was 27. The campaign started as simple as Frates challenging his friends and some celebrities to do the challenge and “strike out ALS” on July 31, 2014. The challenge went viral, with people from all over the world either doing the challenge within 24 hours or donating to the ALS Association. According to ALS.net, they will do the challenge all over again and for every August, until they find a cure. Media Mix: With this campaign, Pete first used his personal Facebook account to nominate his friends and then had his own page – Team FrateTrain – which is dedicated to striking out ALS. The campaign also used social media as its primary mode of promoting the campaign since every person who will participate in the challenge had to post their video of doing the actual challenge online. Since we are now in the Age of Millennial everything is posted online and because of the behavior of society nowadays always following the trends. Also, because celebrities were doing it since they have followers most likely it piqued the......

Words: 563 - Pages: 3

Premium Essay

Comparing Competencies of the Associate Versus Baccalaureate Degree Prepared Nurse

...Competencies of the Associate Versus Baccalaureate Degree Prepared Nurse The American Association of Nursing (AACN) defines nursing as “the protection, promotion, and organization of health and abilities, prevention of illness and injury, alleviation of suffering through the diagnosis and treatment of human response, and advocacy in the care of individuals, families, communities, and populations”. (American Nurses Association;) Nurses receive education in the United States by completing a baccalaureate degree (BSN), associate degree (ADN) or diploma program. Graduation from one of these programs allow the nurse to be eligible to write the National Council Licensure Examination for Registered Nurses (NCLEX-RN), which nursing graduates must pass in order to receive initial licensure (ANA). Once the nurse has achieved licensure, they earn the title of Registered Nurse (RN); little differentiation exists in terms of entry-level practice, so one might wonder why a nursing student would choose a baccalaureate degree program over an associate or diploma program. The purpose of this paper is to discuss the difference in competencies between the ADN and BSN, and how those differences might influence the practice of the nurse. The paper will not discuss the diploma prepared RN because “diploma programs have diminished steadily-to 4% of all basic RN programs in 2006…” (American Nurses Association, 2011) Describing Competency In order to illustrate the difference in......

Words: 1568 - Pages: 7

Premium Essay

Brand Equity

...determined by the publication of the Aaker (1991, 1994 and 1996) and Keller(1993,2003). In order to distinguish between consumer based brand equity and brand equity expressed in financial term, the English literature uses consumer based brand equity (Keller 1993, Vazquez et al. 2002) instead of brand equity measure expressed in financial terms ( Ailawadi et al . 2003 Srinivasan et al . 2005). Brand equity expressed in financial terms sometimes mentioned as brand value, both having the same translation in Hungarian ( Shrinivasan and Shocker 1991 , Salinas and Ambler 2009 , Interbrand). Brand equity was traditionally measure at the level of consumer goods (Netemeyer et al .2003 Yoo and Doonthu 2001 , Vazquez et al . 2002 , Lehmann et al . 2008 Martensen and Gronholdt 2004), but lately financial services (Chemantony et al .2004), online services (Christodoulides et al. 2006 , chau and Ho 2008 ) and model suitable for measuring B2B brand(Jensen and Klastrup 2008 ). BRAND EQUITY DEFINIATION: According to Farquhar (1989), brand equity is added value endowed by the brand to the product. This definition stood at the basis of several further instruments measuring brand equity (Park and Srinivasan 1994, Srinivasan et al. 2005). Aaker (1991) defines brand equity as a set of brand assets or liabilities that add to or subtract from the value provided by the product or services. In Keller’s interpretation (1993) brand equity is ‘’is the diffrentional effect of brand knowledge on......

Words: 4324 - Pages: 18

Premium Essay

Team Management

...(Kirkpartick & Locke, 1996), emotional responsibility (Barling et al, 1996), characteristic inspiration (Charbonneau, Barling & Kelloway, 2001) and confide in the pioneer (Podsakoff et al., 1990). Positive connections have likewise been reliably reported between individual, bunch and organizational execution. Normally, these discoveries have been clarified as demonstrating that pioneer practices cause fundamental qualities, convictions and mentality of supporters to adjust to organizational aggregate intrigues (Podsakoff, MacKenzie, Moorman & Chain, 1990). Transformational leadership has been considered as the most noticeable point in the exploration and speculations of leadership (Bass, 1998; Pawar and Eastman, Smolders (1978) characterized transformational leadership as the methodology of seeking after group objectives through the common tapping of pioneers' and adherents' thought process bases toward the accomplishment of the expected change. Transformational leadership can be seen at the point when "pioneers and devotees make one another to progress to a larger amount of good and inspiration" (Burns, 1978). Bass (1985) based on Burns (1978) work and portrayed transformational leadership as a style of leadership that transforms adherents to rise over their excitement toward oneself by changing their spirit, standards, intrigues, and qualities,rousing them to perform better than at first anticipated. (Bass et al., 1990, p. 21) stated that transformational......

Words: 1593 - Pages: 7

Free Essay

Hla and Coeliac Disease

...B R I E F C O M M U N I C AT I O N S © 2007 Nature Publishing Group http://www.nature.com/naturegenetics A genome-wide association study for celiac disease identifies risk variants in the region harboring IL2 and IL21 David A van Heel1, Lude Franke2,17, Karen A Hunt1,17, Rhian Gwilliam3,17, Alexandra Zhernakova2, Mike Inouye3, Martin C Wapenaar4, Martin C N M Barnardo5, Graeme Bethel3, Geoffrey K T Holmes6, Con Feighery7, Derek Jewell8, Dermot Kelleher7, Parveen Kumar1, Simon Travis9, Julian RF Walters10, David S Sanders11, Peter Howdle12, Jill Swift13, Raymond J Playford1, William M McLaren3, M Luisa Mearin14,15, Chris J Mulder16, Ross McManus7, Ralph McGinnis3, Lon R Cardon8, Panos Deloukas3 & Cisca Wijmenga2,4 We tested 310,605 SNPs for association in 778 individuals with celiac disease and 1,422 controls. Outside the HLA region, the most significant finding (rs13119723; P ¼ 2.0 Â 10–7) was in the KIAA1109-TENR-IL2-IL21 linkage disequilibrium block. We independently confirmed association in two further collections (strongest association at rs6822844, 24 kb 5¢ of IL21; metaanalysis P ¼ 1.3 Â 10–14, odds ratio ¼ 0.63), suggesting that genetic variation in this region predisposes to celiac disease. Celiac disease is a common (1% prevalence) small intestinal inflammatory condition induced by dietary wheat, rye and barley. However, despite high heritability (estimated at 87% from twin studies1), no non-HLA genetic risk factors have been identified and convincingly replicated.......

Words: 3358 - Pages: 14